Connecting with another parent who has a child with a similar specialized care need or diagnosis can be one of the most helpful resources a parent will have – it can help make their journey a little easier. Trainings prepare you to give support to another parent who is parenting a child with special health needs. Join Parent-to-Parent for our Support Parent Training and help us meet the increasing need for peer support. Trainings are through Zoom.
Wednesday, June 29th
Please RSVP by June 25th
Register at: P2P6-29-2022.eventbrite.com
This is a two hour training. Materials will be emailed ahead of time. The
Zoom link will be provided a few days before the event. There are pre
and post training requirements.
P2P Support Parent Training Flier June 2022
P2P Support Parent Training Flier July 2022
P2P Support Parent Training Flier August 2022
- Thursday, June 9, 2022
- 12 Noon-2:30 PM
- Frank B. Koller Memorial Library
- 5761 US-51 Manitowish Waters, WI 54545
- Friday, June 17, 2022
- 12 Noon-2:30 PM
- Mercer Public Library
- 2648 Margaret St, Mercer, WI 54547
- Get to know the services of the Northern Regional Center for Children and Youth with Special Health Care Needs
- Make a Care Binder to organize your child’s medical and school information to help keep track of information from multiple specialists and therapies
- Provide feedback on what trainings the Regional Center should offer locally
- Tell us about the assets and resources in your area
- Pick up Fact Sheets from Family Voices and booklets on various disabilities
- Activities available for kids, including making fidgets while parents chat
No need to RSVP, but if you need specific resources, contact us so we make sure to bring them.
Connect and Share Flyer MWaters
Connect and Share Flyer Mercer
We wanted to provide some updates on summer camps for 2021 as families start planning. The Northern Regional Center does not endorse any of these camps and this information is provided only as a resource. When considering camps there can be many options depending on your child’s needs and interests. You can talk to camps to see if they can accommodate your child or other parents who may have already had their children participate.
- Easter Seals Camp Wawbeek in Wisconsin Dells. Several camp options at different times of the year including transition, respite, autism, and adults.
- Badger Camp: have many options for campers ages 3-21 with intellectual disabilities. One or two week sessions. For older kids they have travel and primitive camp options too. Near Praire Du Chein.
- Timbertop Camp: summer camp for youth with specific learning disabilities/ special needs including AD/HD, SLD, Title 1, OHI that is held at the Wisconsin Lions Camp in Rosholt near Stevens Point.
- Variety Chatter Matters Camp at UW Whitewater is available to children ages 5-15 who use Augmentative and Alternative Communication and their families.
- Camp Awesum fills up very quickly each year and registration for Youth Camp for 2022 opened on 1/2/22. Note that there have been some changes for 2022. Dr. Glenis Benson is no longer involved, the Youth Camp has been moved to Daycolah Center near Ripon, WI and a new camp for ages 5-8 with an adult is starting.
- Wisconsin Lions Camp is is in Rosholt near Stevens Point. Week long camps for different types of disabilities including Blind/Low Vision, Deaf/Hard of Hearing, Autism/Intellectual Disabilities, Epilepsy Diabetes. Wisconsin Lions Camp programs are free but have a lottery.
- Wisconsin Youth Leadership Forum– occurs yearly in the summer at Edgewood College in Madison. Become a part of the youth that lead us! This week-long forum is for high school students with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness.
- Camp LuWiSoMo Joyful Hearts ministry is designed for individuals with developmental disabilities, providing a quality camping experience in a safe, Christian environment. All campers take part in the usual camp activities, but each activity is modified based on the needs of the camper. Located in Wild Rose, WI (south of Stevens Point)
- Camp Daniel is an organization dedicated to providing people with disabilities opportunities for personal, social, and spiritual growth. Camp Daniel is rooted in its summer camping program that offers people with disabilities access to safe and fun Northwoods camping experiences, where the physical, social, and spiritual needs, that each person’s disability requires, are lovingly met. In Marinette County.
- 4-H Camp Susan is located near Deerbrook, in the rural Northwoods:
- You can hear more about how Camp Susan has accommodated campers in the past with this video: youtu.be/IK4PcchE2es
- Fort Wilderness camp near Rhinelander is another camp that parents have said their children with disabilities/ special health care needs have enjoyed
- YMCA Camp Sturtevant in Wausau offers day camps for the entire summer as well as other opportunities. They do accept the child care subsidy and have camper scholarships.
- Rainbow’s End Day Camp for children 5-21 typically in July in Wausau
- Numerous camps affiliated with the Paul Newman Foundation like Hole in the Wall Gang and Painted Turtle host weeks for specific disability groups.
- Bayfield County 4-H Summer Camp is available to youth not involved in 4-H as well as members.
Our partners at Family Voices of Wisconsin created this list of camps across the state a few years ago if you are looking outside the area: familyvoiceswi.org/resource-library/1304/.
Cost of camps: Camps are funded in a variety of ways and the costs can vary greatly. Child care subsidies or a sliding fee scale may assist with camp. Some camps have scholarships available or you may be able to utilize CLTS funds for camp as respite. Give us a call, 715-261-1906, if you need help navigating all these options or want more information.
January Parent Network Discussion: Caregivers/Respite
Parents and caregivers have always struggled to find respite and other supports for children with disabilities. With the current caregiver shortage and Covid-19 this has become worse. Some parents have created unique situations or workarounds to find caregivers. Come share your ideas as well as learn from others.
Join us via Zoom
- Tuesday, January 11, 2022, at 6 PM
- Thursday, January 20, 2022, at 12 Noon
- Saturday, January 29, 2022, at 8:30 AM
If you have questions or want more information, contact Allison at 715-261-1906 or via email at Allison.firstname.lastname@example.org.
CYSHCN Parent Network Flyer Jan 2022.
About our Parent Network
The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through a Parent Network.
- Hear from the many great parent leaders in our area who have valuable information.
- An opportunity to network with each other.
- Let us know what is working and what is not. Provide us feedback on how best to help families
Updates and information on changes to Wisconsin programs and services
Resources specific to families with children with Special Health Care Needs/ Disabilities
Schools and Special Education
- Information from DPI Spring 2021
- Guidance for IEP teams making compensatory services determinations: The special education team has released a new presentation slide deck with additional information for IEP teams making compensatory service determinations this spring. The presentation provides clarification on the differences between compensatory services and other services provided in addition to the IEP such as extended school year services. IEP teams will also find discussion questions to utilize when making compensatory services determinations in the presentation. To view a copy of the presentation click here. Additional information is also updated in the DPI COVID 19 Special Education Question and Answer Document.
- COVID-19 Special Education Question and Answer Document, Compensatory or Recovery Services: This week, the Department added a Section B to the COVID-19 Special Education Question and Answer document, titled “Compensatory or Recovery Services”. This section explains the differences between compensatory or recovery services and additional services, explains how to determine if these services are required, provides information about funding sources, and identifies considerations and requirements for students who have graduated with a regular diploma or reached the age of 21 during the 2020-21 school year.
- Updated CoP Recording: Family Engagement and Extended School Year (ESY): The March 1, Community of Practice: Supporting Students with IEPs during COVID-19 meeting recording is now available. This video is on the topic of family engagement as well as an update on additional services and extended school year discussions as they relate to COVID-19. Wisconsin DPI thanks the Wisconsin Statewide Parent Educator Initiative (WSPEI) for their assistance and co-presentation of this important content. Video links from the meeting are below and all recorded videos can be accessed on this DPI special education team professional learning events page.
Part 1: Introduction, Family Engagement during COVID-19
Part 2: Additional Services, Extended School Year Considerations and Engaging Families
Access to Internet/Communications