Connect and Share opportunities are for families of children with disabilities and/or special health care needs to connect with other families and discuss specific topics and share resources.
Wednesday, June 7 at 6:00 PM: Private Duty Nursing- many parents cannot find this Medicaid service for their children who have complex medical needs. Family Voices of Wisconsin will join the discussion.
No RSVP needed. You can join via Zoom by phone or video:
• To join via video: zoom.us/j/7549091421 (If you join the video conference and have trouble with audio or low internet bandwith, you can also join by phone but stay on the video as well.)
• To join by phone, dial one of these numbers: 1-646-876-9923 or 1-669-900-6833. Enter the Meeting ID when prompted- 7549091421 and #(pound), then # again when prompted for a participant ID
• Or use “One tap mobile” on your smart phone by just entering the following (including commas): 16468769923,,7549091421#,,#
Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906 or email firstname.lastname@example.org.
- Transition Trainings- we are planning several transition trainings in person in the fall from our partners at the Youth Health Transition Initiative
- Build Your Bridge: Moving from Child to Adult Health Care: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
- Bridging the Gap: An overview of youth health transition with information tailored to different, mixed audiences (e.g., parents, teachers, nurses, etc.).
- Dreaming Differently: To meet the needs of a unique audience, the “Build Your Bridge” curriculum has been adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity.
- Trainings with Katie Berg through your local CESA
- The Supporting Neurodiverse Students (SNS) Professional Learning System provides learning opportunities with a focus on regulation, social communication, flexibility, resilience, sensory processing, and executive functioning. It includes regional training sessions, virtual trainings, and virtual cohorts to support educators and families serving students with disability-related needs in the area of social and emotional learning.
- Virtual and In Person opportunities listed here
Saturday, October 8, 2022
9 AM- 12 Noon
Light Breakfast/ Snacks provided
Come learn about the parts of IEP process including the referral process, evaluations, writing the IEP, and revising the IEP. Bring your child’s IEP with you and there will time to also ask questions.
Provided in small groups via zoom by Nelsinia Ramos from WI FACETS:
- Ashland, Northland Technical College Conference Room 306
- Rhinelander, Quality Inn
- Stevens Point, Midstate Independent Living Choices
- Wausau, Northcentral Technical College
Saturday, September 17, 2022
9:30 AM – 2:30 PM
Northwood Technical College Conference Center, Ashland, WI (use parking lot on far south side and enter in through door S4)
Sharing Circles– informal conversations throughout the day
• Practicing good Self-Care for parents
• What resources and tools are available to keep my child safe?
• How does my family access different services and supports?
• Parenting support/ raising grandchildren
• How do I best make use of therapy supports for my child?
• 10:00 AM Build Your Bridge: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
• 11:30 AM Did You Know? Now You Know!: explains resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include: Medicaid, Children’s Long-Term Supports, prior authorizations and appealing a Medicaid denial, respite, partnering with your doctor, and more.
• 1:00 PM Caring for the Whole Family: Tips and guidance from parents for parents of children with special health care needs/disabilities
• Resource Tables and demonstration booths from local organizations
• Asset Mapping- share what assets are in your community and learn the gifts of your neighbors
• Build a Care Notebook: a way to organize school information, medical records, and other important information to share with others.
• Kids Activties: coloring pages, stickers, make your own fidget, and others activities
Help us plan by filling at this brief form- you do not need to RSVP to attend.
Family Support Summit Ashland Flyer
Your Input is Valuable- please fill out our survey regarding Family, Youth, and Community Engagement here.
Parents Sought for Ongoing Feedback
The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through Parent Advisory Councils. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional trainings and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.
We are looking for:
- Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
- Live in the 15 counties that are a part of the Northern Regional Center services area. 3 separate Parent Advisory Councils will be set up so that travel will be minimized. These three areas are divided up by color in the map below.
- Are willing to provide feedback and suggestions on CYSHCN supports and services
We will hold these meetings twice a year on a weekday evening with a phone/ video conference option as well. Dinner will be provided and parents can receive a gas card for mileage reimbursement if needed.
If you are interested in participating or want more information, contact Allison Lourash at 715-261-1906 or via email at Allison.email@example.com.