January Parent Network- Caregiver Crisis/ Respite

January Parent Network Discussion: Caregivers/Respite

Parents and caregivers have always struggled to find respite and other supports for children with disabilities. With the current caregiver shortage and Covid-19 this has become worse. Some parents have created unique situations or workarounds to find caregivers. Come share your ideas as well as learn from others.

Join us via Zoom

  • Tuesday, January 11, 2022, at 6 PM
  • Thursday, January 20, 2022, at 12 Noon
  • Saturday, January 29, 2022, at 8:30 AM

Login-Info

If you have questions or want more information, contact Allison at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

CYSHCN Parent Network Flyer Jan 2022.


About our Parent Network

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through a Parent Network.

  • Hear from the many great parent leaders in our area who have valuable information.
  • An opportunity to network with each other.
  • Let us know what is working and what is not. Provide us feedback on how best to help families

Upcoming Trainings and Conferences

Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906. 

 

Support and Resources during COVID19 (Updated 4/13/21)

Updates and information on changes to Wisconsin programs and services

Resources specific to families with children with Special Health Care Needs/ Disabilities 

Schools and Special Education

  • Information from DPI Spring 2021
    • Guidance for IEP teams making compensatory services determinations: The special education team has released a new presentation slide deck with additional information for IEP teams making compensatory service determinations this spring. The presentation provides clarification on the differences between compensatory services and other services provided in addition to the IEP such as extended school  year services. IEP teams will also find discussion questions to utilize when making compensatory services determinations in the presentation. To view a copy of the presentation click here.   Additional information is also updated in the DPI COVID 19 Special Education Question and Answer Document.
    • COVID-19 Special Education Question and Answer Document, Compensatory or Recovery Services: This week, the Department added a Section B to the COVID-19 Special Education Question and Answer document, titled “Compensatory or Recovery Services”. This section explains the differences between compensatory or recovery services and additional services, explains how to determine if these services are required, provides information about funding sources, and identifies considerations and requirements for students who have graduated with a regular diploma or reached the age of 21 during the 2020-21 school year.
    • Updated CoP Recording: Family Engagement and Extended School Year (ESY): The March 1, Community of Practice: Supporting Students with IEPs during COVID-19 meeting recording is now available.  This video is on the topic of family engagement as well as an update on additional services and extended school year discussions as they relate to COVID-19.  Wisconsin DPI thanks the Wisconsin Statewide Parent Educator Initiative (WSPEI) for their assistance and co-presentation of this important content.  Video links from the meeting are below and all recorded videos can be accessed on this DPI special education team professional learning events page.

Part 1: Introduction, Family Engagement during COVID-19

Part 2: Additional Services, Extended School Year Considerations and Engaging Families

Resiliency/ Trauma

Access to Internet/Communications

Family Input needed

Your Input is Valuable- please fill out our survey regarding Family, Youth, and Community Engagement here

Parents Sought for Ongoing Feedback

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through Parent Advisory Councils. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional trainings and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.

We are looking for:

  • Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
  • Live in the 15 counties that are a part of the Northern Regional Center services area. 3 separate Parent Advisory Councils will be set up so that travel will be minimized. These three areas are divided up by color in the map below. 
  • Are willing to provide feedback and suggestions on CYSHCN supports and services

We will hold these meetings twice a year on a weekday evening with a phone/ video conference option as well. Dinner will be provided and parents can receive a gas card for mileage reimbursement if needed.

If you are interested in participating or want more information, contact Allison Lourash at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.