January Parent Network- Caregiver Crisis/ Respite

January Parent Network Discussion: Caregivers/Respite

Parents and caregivers have always struggled to find respite and other supports for children with disabilities. With the current caregiver shortage and Covid-19 this has become worse. Some parents have created unique situations or workarounds to find caregivers. Come share your ideas as well as learn from others.

Join us via Zoom

  • Tuesday, January 11, 2022, at 6 PM
  • Thursday, January 20, 2022, at 12 Noon
  • Saturday, January 29, 2022, at 8:30 AM

Login-Info

If you have questions or want more information, contact Allison at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

CYSHCN Parent Network Flyer Jan 2022.


About our Parent Network

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through a Parent Network.

  • Hear from the many great parent leaders in our area who have valuable information.
  • An opportunity to network with each other.
  • Let us know what is working and what is not. Provide us feedback on how best to help families

Upcoming Trainings and Conferences

Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906. 

 

Build Your Bridge Transition Training

Build Your Bridge: Moving from Child to Adult Health Care

This is a free presentation and conversation to help guide families through the transition from child-centered to adult health care systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about health care transition as well as provide helpful tools and resources. 

As a result of participating in this presentation we hope you will:
• Understand what youth health care transition is and why it is important.
• Identify activities in daily life where transition occurs.
• Apply tools and resources to take an active role in the health care transition process.
• Start a health transition action plan

Thursday, January 21, 2021 at 7:30-8:30 PM or

Saturday, January 23, 2021 at 8:30-9:30 AM

You can register at: tinyurl.com/y48upo72. Contact the Northern Regional Center for Children and Youth with Special Health Care Needs at 715-261-1906 with any questions. We will email you instructions on joining Zoom along with a link to a video that provides an introduction to health transition.

Build Your Bridge Jan 2020 Flyer

 

Fall Virtual Conferences

There are a number of conferences taking place virtually this fall that are listed below. Many offer scholarships. The Northern Regional CYSHCN Center can also provide scholarships for registration for any of these conferences. Use the Contact Us form and we will send you the form. 

Wisconsin Infant and Early Childhood Mental Health Conference

October 19-21, 2020

wiaimh.org/conference

Self Determination Conference- FREE

October 26- 28, 2020

Virtual Self-Determination Conference

“Essential Supports for People with FASD”

October 30, 2020 ~ 8:30 AM to 12:00 PM,

ORCHIDS

Transition Parents in Partnership October- May

Statewide Tuesday Evening Training (13 sessions)
Statewide Saturday Training (8 sessions)

“PIP is a statewide program in which a group of parents and other caregivers meet together during the year to share their family stories, challenges, joys and triumphs of raising their children. At PIP participants will learn about the community and statewide resources for children with disabilities; explore issues around health, education, transition, policy making, legislation, inclusion, self-determination, family well-being, and IDEA Special Education Law.”

PIP Flyer with dates

Support and Resources during COVID19 (Updated 4/13/21)

Updates and information on changes to Wisconsin programs and services

Resources specific to families with children with Special Health Care Needs/ Disabilities 

Schools and Special Education

  • Information from DPI Spring 2021
    • Guidance for IEP teams making compensatory services determinations: The special education team has released a new presentation slide deck with additional information for IEP teams making compensatory service determinations this spring. The presentation provides clarification on the differences between compensatory services and other services provided in addition to the IEP such as extended school  year services. IEP teams will also find discussion questions to utilize when making compensatory services determinations in the presentation. To view a copy of the presentation click here.   Additional information is also updated in the DPI COVID 19 Special Education Question and Answer Document.
    • COVID-19 Special Education Question and Answer Document, Compensatory or Recovery Services: This week, the Department added a Section B to the COVID-19 Special Education Question and Answer document, titled “Compensatory or Recovery Services”. This section explains the differences between compensatory or recovery services and additional services, explains how to determine if these services are required, provides information about funding sources, and identifies considerations and requirements for students who have graduated with a regular diploma or reached the age of 21 during the 2020-21 school year.
    • Updated CoP Recording: Family Engagement and Extended School Year (ESY): The March 1, Community of Practice: Supporting Students with IEPs during COVID-19 meeting recording is now available.  This video is on the topic of family engagement as well as an update on additional services and extended school year discussions as they relate to COVID-19.  Wisconsin DPI thanks the Wisconsin Statewide Parent Educator Initiative (WSPEI) for their assistance and co-presentation of this important content.  Video links from the meeting are below and all recorded videos can be accessed on this DPI special education team professional learning events page.

Part 1: Introduction, Family Engagement during COVID-19

Part 2: Additional Services, Extended School Year Considerations and Engaging Families

Resiliency/ Trauma

Access to Internet/Communications