2023 Connect and Shares

Image with text- Connect and Share for families of children with disabilities and/or special health care needs

Winter Virtual Options

January 2- 11:30 AM- 1 PM: Resource Drop-In. What are resources you are looking for in 2023?

January 9 at 6-7 PM– Activities to get through winter and planning for summer camps 

February TBD– Private Duty Nursing/Respite/School Health Services

Learn about local programs through brief presentations

  • Learn about support and information of the Northern Regional Center for Children and Youth with Special Health Care Needs
  • Ask questions about various programs and services available like Children’s Long Term Supports and Medicaid
  • Help us map out resources in the area
  • Get connected to resources, fact sheets from Family Voices, and booklets on various disabilities

No RSVP needed. You can join via Zoom by phone or video:

  • To join via video: zoom.us/j/7549091421 (If you join the video conference and have trouble with audio or have low bandwith you can also join by phone but stay on the video as well.)
  • To join by phone, dial one of these numbers: 1-646-876-9923 or 1-669-900-6833. Enter the Meeting ID when prompted- 7549091421 and #(pound), then # again when prompted for a participant ID
  • Or you can use “One tap mobile” on your smart phone by just entering the following: 16468769923,,7549091421#,,#

 

Winter Bridging the Gap Trainings

This session is open to families/caregivers as well as professionals.

Join us for a free presentation and conversation to help guide families through the transition from child centered to adult health systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about transition as well as provide helpful tools and resources.

DATES & TIMES:   Thursday, December 15, 2022, 7-8 PM

                               Saturday, January 21, 2023, 8:30-9:30 AM

                               Monday, January 23, 2023, 6-7 PM

LOCATION:            Zoom video/phone conferencing

As a result of participating in this presentation we hope you will:

  • Understand what youth health care transition is and why it is important.
  • Identify activities in daily life where transition occurs.
  • Apply tools and resources to take an active role in the health care transition process.
  • Learn how to start a health transition action plan.

Dreaming Differently, another training from our CYSHCN Network, is adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity. Contact us to learn the next time this is being offered. 

Register here: marathonwi.co1.qualtrics.com/jfe/form/SV_0rFZmtcigd305n0

QR code that goes to registration

 

 

Family Advisor Positions

*These positions have been closed but any additional opportunities will be posted here. 

These positions are a unique opportunity for parents to use their experiences to work on short term projects this fall and provide feedback on other aspects of programming.

•Several Parent Advisors will be hired throughout our region for short term opportunities through the end of 2022.

•Some will engage in a clearly identified projects that address needed support for families.

Examples of Work Performed: 

  • Assist with the development of content and materials produced by the Northern Regional Center for families.
  • Attend 3 regional meetings between September-December to provide input with other parents/caregivers on Northern Regional Center programs and services.
  • Support the planning of regional events for families including providing input beforehand, promoting the events, and assisting at the events.
  • Provide feedback on information produced by the Northern Regional Center including social media posts, website content, and other materials prepared for families.
  • Explore an issue that effects families of children with disabilities and develop resources to address this.
  • Promote the events of the Northern Regional Center through a media outreach plan
  • Identify new resources and follow up on sharing them to interested parties in multiple formats.
  • Perform related work, including documentation of work performed, as required.

Upcoming Support Parent Trainings

Connecting with another parent who has a child with a similar specialized care need or diagnosis can be one of the most helpful resources a parent will have – it can help make their journey a little easier. Trainings prepare you to give support to another parent who is parenting a child with special health needs. Join Parent-to-Parent  for our Support Parent Training and help us meet the increasing need for peer support. Trainings are through Zoom.

Wednesday, June 29th
5:30pm-7:30pm
Please RSVP by June 25th
Register at: P2P6-29-2022.eventbrite.com
This is a two hour training. Materials will be emailed ahead of time. The
Zoom link will be provided a few days before the event. There are pre
and post training requirements.

P2P Support Parent Training Flier June 2022

P2P Support Parent Training Flier July 2022

P2P Support Parent Training Flier August 2022

Summer Connect and Shares

  • Thursday, June 9, 2022
    • 12 Noon-2:30 PM
    • Frank B. Koller Memorial Library
    • 5761 US-51 Manitowish Waters, WI 54545
  • Friday, June 17, 2022
    • 12 Noon-2:30 PM
    • Mercer Public Library
    • 2648 Margaret St, Mercer, WI 54547

  • Get to know the services of the Northern Regional Center for Children and Youth with Special Health Care Needs
  • Make a Care Binder to organize your child’s medical and school information to help keep track of information from multiple specialists and therapies
  • Provide feedback on what trainings the Regional Center should offer locally
  • Tell us about the assets and resources in your area
  • Pick up Fact Sheets from Family Voices and booklets on various disabilities
  • Activities available for kids, including making fidgets while parents chat

No need to RSVP, but if you need specific resources, contact us so we make sure to bring them.

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