We currently have an opening for a part-time Community Specialist covering the northern part of our service area (Ashland, Bayfield, Iron, Sawyer, Price, Florence, Forest, Vilas, Oneida counties). Community Specialists provide outreach and technical assistance to stakeholders in a multi-county area to support children with special health care needs/ disabilities access services and supports. Please note, this position is not located within Marathon County.
This position is a unique opportunity to support the northern part of our service area with the expectation that staff live within the area.
- Specialist will be located with a local community partner and/or their home. Travel will occur throughout region. Some travel outside of the area to state and regional meetings may also occur.
- Hours will be approximately 15-20 hours per week and will vary based on need, with some set times to participate in community meetings and other times flexible. Occasional evenings and weekends during peak fall and spring times to support trainings and outreach events are needed.
Candidate with a Bachelor’s Degree in a health or human services field is desired, OR an Associate Degree in a health or human services field and/or equivalent training and education related to family dynamics, children with disabilities, or special education.
Experience navigating systems for children with disabilities
Personal experience as a parent or primary caregiver of a child with a disability/ special health care need strongly preferred
Fluency in Hmong, Spanish, and/or American Sign Language desired
Preference will be given to those living in the northern part of our service region
Full Position Description and Application HERE. Note that the description lists full time but this is a part time position.
This session is open to families/caregivers as well as professionals.
Join us for a free presentation and conversation to help guide families through the transition from child centered to adult health systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about transition as well as provide helpful tools and resources.
DATES & TIMES: Thursday, December 15, 2022, 7-8 PM
Saturday, January 21, 2023, 8:30-9:30 AM
Monday, January 23, 2023, 6-7 PM
LOCATION: Zoom video/phone conferencing
As a result of participating in this presentation we hope you will:
- Understand what youth health care transition is and why it is important.
- Identify activities in daily life where transition occurs.
- Apply tools and resources to take an active role in the health care transition process.
- Learn how to start a health transition action plan.
Dreaming Differently, another training from our CYSHCN Network, is adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity. Contact us to learn the next time this is being offered.
Register here: marathonwi.co1.qualtrics.com/jfe/form/SV_0rFZmtcigd305n0
Here is a list of camps The Northern Regional Center does not endorse any of these camps and this information is provided only as a resource. When considering camps there can be many options depending on your child’s needs and interests. You can talk to camps to see if they can accommodate your child or other parents who may have already had their children participate.
- Easter Seals Camp Wawbeek in Wisconsin Dells. Several camp options at different times of the year including transition, respite, autism, and adults.
- Badger Camp: have many options for campers ages 3-21 with intellectual disabilities. One or two week sessions. For older kids they have travel and primitive camp options too. Near Praire Du Chein.
- Wisconsin Lions Camp is is in Rosholt near Stevens Point. Week long camps for different types of disabilities including Blind/Low Vision, Deaf/Hard of Hearing, Autism/Intellectual Disabilities, Epilepsy Diabetes. Wisconsin Lions Camp programs are free but have a lottery.
- Timbertop Camp: summer camp for youth with specific learning disabilities/ special needs including AD/HD, SLD, Title 1, OHI that is held at the Wisconsin Lions Camp in Rosholt near Stevens Point.
- Variety Chatter Matters Camp at UW Whitewater is available to children ages 5-15 who use Augmentative and Alternative Communication and their families.
- Camp Awesum fills up very quickly each year. Note that there have been some changes including a new online registration system. Additionally, Dr. Glenis Benson is no longer involved and the Youth Camp is on hold.
- Wisconsin Youth Leadership Forum– occurs yearly in the summer at Edgewood College in Madison. Become a part of the youth that lead us! This week-long forum is for high school students with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness.
- Camp LuWiSoMo Joyful Hearts ministry is designed for individuals with developmental disabilities, providing a quality camping experience in a safe, Christian environment. All campers take part in the usual camp activities, but each activity is modified based on the needs of the camper. Located in Wild Rose, WI (south of Stevens Point)
- Camp Daniel is an organization dedicated to providing people with disabilities opportunities for personal, social, and spiritual growth. Camp Daniel is rooted in its summer camping program that offers people with disabilities access to safe and fun Northwoods camping experiences, where the physical, social, and spiritual needs, that each person’s disability requires, are lovingly met. In Marinette County.
- Contact your county 4-H for information on your local camp opportunities. You can hear more about how Camp Susan has accommodated campers in the past with this video: youtu.be/IK4PcchE2es
- Fort Wilderness camp near Rhinelander is another camp that parents have said their children with disabilities/ special health care needs have enjoyed
- YMCA Camp Sturtevant in Wausau offers day camps for the entire summer as well as other opportunities. They do accept the child care subsidy and have camper scholarships.
- Rainbow’s End Day Camp for children 5-21 typically in July in Wausau. TBD if they will have camp in 2023.
- Numerous camps affiliated with the Paul Newman Foundation like Hole in the Wall Gang and Painted Turtle host weeks for specific disability groups across the country
- Bayfield County 4-H Summer Camp is available to youth not involved in 4-H as well as members.
Our partners at Family Voices of Wisconsin created this list of camps across the state a few years ago if you are looking outside the area: familyvoiceswi.org/resource-library/1304/.
Cost of camps: Camps are funded in a variety of ways and the costs can vary greatly. Child care subsidies or a sliding fee scale may assist with camp. Some camps have scholarships available or you may be able to utilize CLTS funds for camp as respite. Give us a call, 715-261-1906, if you need help navigating all these options or want more information.
Winter Virtual Options
January 2- 11:30 AM- 1 PM: Resource Drop-In. What are resources you are looking for in 2023?
January 9 at 6-7 PM– Activities to get through winter and planning for summer camps
February TBD– Private Duty Nursing/Respite/School Health Services
Learn about local programs through brief presentations
- Learn about support and information of the Northern Regional Center for Children and Youth with Special Health Care Needs
- Ask questions about various programs and services available like Children’s Long Term Supports and Medicaid
- Help us map out resources in the area
- Get connected to resources, fact sheets from Family Voices, and booklets on various disabilities
No RSVP needed. You can join via Zoom by phone or video:
- To join via video: zoom.us/j/7549091421 (If you join the video conference and have trouble with audio or have low bandwith you can also join by phone but stay on the video as well.)
- To join by phone, dial one of these numbers: 1-646-876-9923 or 1-669-900-6833. Enter the Meeting ID when prompted- 7549091421 and #(pound), then # again when prompted for a participant ID
- Or you can use “One tap mobile” on your smart phone by just entering the following: 16468769923,,7549091421#,,#
Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906 or email email@example.com.
- Transition Trainings- we are planning several transition trainings in person in the fall from our partners at the Youth Health Transition Initiative
- Build Your Bridge: Moving from Child to Adult Health Care: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
- Bridging the Gap: An overview of youth health transition with information tailored to different, mixed audiences (e.g., parents, teachers, nurses, etc.).
- Dreaming Differently: To meet the needs of a unique audience, the “Build Your Bridge” curriculum has been adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity.
- Trainings with Katie Berg through your local CESA
- The Supporting Neurodiverse Students (SNS) Professional Learning System provides learning opportunities with a focus on regulation, social communication, flexibility, resilience, sensory processing, and executive functioning. It includes regional training sessions, virtual trainings, and virtual cohorts to support educators and families serving students with disability-related needs in the area of social and emotional learning.
- Virtual and In Person opportunities listed here