2023 Connect and Shares

Image with text- Connect and Share for families of children with disabilities and/or special health care needs

Winter Virtual Options

January 9 at 6 PM- Activities to get through winter and planning for summer camps 

February TBD- Private Duty Nursing/Respite/School Health Services

Learn about local programs through brief presentations

  • Learn about support and information of the Northern Regional Center for Children and Youth with Special Health Care Needs
  • Ask questions about various programs and services available like Children’s Long Term Supports and Medicaid
  • Help us map out resources in the area
  • Get connected to resources, fact sheets from Family Voices, and booklets on various disabilities

No RSVP needed. You can join via Zoom by phone or video:

  • To join via video: us/j/7549091421 (If you join the video conference and have trouble with audio or have low bandwith you can also join by phone but stay on the video as well.)
  • To join by phone, dial one of these numbers: 1-646-876-9923 or 1-669-900-6833. Enter the Meeting ID when prompted- 7549091421 and #(pound), then # again when prompted for a participant ID
  • Or you can use “One tap mobile” on your smart phone by just entering the following: 16468769923,,7549091421#,,#

Stay tuned for in person options in the spring at a library near you!

Winter Bridging the Gap Trainings

This session is open to families/caregivers as well as professionals.

Join us for a free presentation and conversation to help guide families through the transition from child centered to adult health systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about transition as well as provide helpful tools and resources.

DATES & TIMES:   Thursday, December 15, 2022, 7-8 PM

                               Saturday, January 21, 2023, 8:30-9:30 AM

                               Monday, January 23, 2023, 6-7 PM

LOCATION:            Zoom video/phone conferencing

As a result of participating in this presentation we hope you will:

  • Understand what youth health care transition is and why it is important.
  • Identify activities in daily life where transition occurs.
  • Apply tools and resources to take an active role in the health care transition process.
  • Learn how to start a health transition action plan.

Dreaming Differently, another training from our CYSHCN Network, is adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity. Contact us to learn the next time this is being offered. 

Register here: marathonwi.co1.qualtrics.com/jfe/form/SV_0rFZmtcigd305n0

QR code that goes to registration

 

 

Fall Events and Updates

Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906 or email specialneedsinfo@co.marathon.wi.us

  • Transition Trainings- we are planning several transition trainings in person in the fall from our partners at the Youth Health Transition Initiative
    • Build Your Bridge: Moving from Child to Adult Health Care: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
    • Bridging the Gap: An overview of youth health transition with information tailored to different, mixed audiences (e.g., parents, teachers, nurses, etc.).
    • Dreaming Differently: To meet the needs of a unique audience, the “Build Your Bridge” curriculum has been adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity.
  • Trainings with Katie Berg through your local CESA
    • The Supporting Neurodiverse Students (SNS) Professional Learning System provides learning opportunities with a focus on regulation, social communication, flexibility, resilience, sensory processing, and executive functioning. It includes regional training sessions, virtual trainings, and virtual cohorts to support educators and families serving students with disability-related needs in the area of social and emotional learning.  
    • Virtual and In Person opportunities listed here 

Minocqua Family Support Summit

Free!

Open to all families with children with special health care needs/disabilities!

Family Support Summit Schedule

Sunday, October 23, 2022

11 AM-2PM (booths open at 10:30)

Waters of Minocqua- lower level conference rooms, South 8116, US-51, Minocqua, WI 54548 (activities in the waterpark are not part of the Summit)

Lunch from Minocqua Pizza Company will be served at 12 noon.

Mileage reimbursement available

Please contact  us with any questions, need for accommodations, or to let us know you are coming-

1-715-261-1906 

Sharing Circles– parent led conversations

  • Practicing good Self-Care for parents
  • What resources and tools are available to keep my child safe?
  • How does my family access different services and supports?
  • Parenting support/ raising grandchildren
  • How do I best make use of therapy supports for my child?

Presentation Schedule

  • 11:00 AM Mindfullness: Mindfulness is a skill to orient ourselves in the actual moment we are experiencing. We are also less reactive, stressed, and overwhelmed. This program will teach or remind you of why this is so practical and restorative. Taught through simple exercises, we will expand into uses in everyday life. Join Kathy Mitchell, who was a psychotherapist for over 40 years. She began practicing and teaching mindfulness and meditation 13 years ago and has offered programs on related topics throughout the community. In retirement, she continues to offer virtual, monthly Mindfulness programs and leads area meditation groups.
  • 12:30 PM Bridging the Gap- This training from the Wisconsin Youth Health Transition Initative is an overview of youth health transition (to adult services and supports)

Other opportunities:

  • Resource Tables and demonstration booths from local organizations
  • Asset Mapping- share what assets are in your community and learn the gifts of your neighbors
  • Build a Care Notebook: a way to organize school information, medical records, and other important information to share with others.
  • Kids Activities: coloring pages, stickers, make your own fidget, and others activities

You do not need to RSVP, but you can fill out this form to help us with planning and to get updates. 

This form is disabled.

IEP Clinic for Families

Saturday, October 8, 2022

9 AM- 12 Noon

Light Breakfast/ Snacks provided

Come learn about the parts of IEP process including the referral process, evaluations, writing the IEP, and revising the IEP. Bring your child’s IEP with you and there will time to also ask questions.

Provided in small groups via zoom by Nelsinia Ramos from WI FACETS:

  • Ashland, Northland Technical College Conference Room 306
  • Rhinelander, Quality Inn
  • Stevens Point, Midstate Independent Living Choices
  • Wausau, Northcentral Technical College