Support and Resources during COVID19 (Updated 4/13/21)

Updates and information on changes to Wisconsin programs and services

Resources specific to families with children with Special Health Care Needs/ Disabilities 

Schools and Special Education

  • Information from DPI Spring 2021
    • Guidance for IEP teams making compensatory services determinations: The special education team has released a new presentation slide deck with additional information for IEP teams making compensatory service determinations this spring. The presentation provides clarification on the differences between compensatory services and other services provided in addition to the IEP such as extended school  year services. IEP teams will also find discussion questions to utilize when making compensatory services determinations in the presentation. To view a copy of the presentation click here.   Additional information is also updated in the DPI COVID 19 Special Education Question and Answer Document.
    • COVID-19 Special Education Question and Answer Document, Compensatory or Recovery Services: This week, the Department added a Section B to the COVID-19 Special Education Question and Answer document, titled “Compensatory or Recovery Services”. This section explains the differences between compensatory or recovery services and additional services, explains how to determine if these services are required, provides information about funding sources, and identifies considerations and requirements for students who have graduated with a regular diploma or reached the age of 21 during the 2020-21 school year.
    • Updated CoP Recording: Family Engagement and Extended School Year (ESY): The March 1, Community of Practice: Supporting Students with IEPs during COVID-19 meeting recording is now available.  This video is on the topic of family engagement as well as an update on additional services and extended school year discussions as they relate to COVID-19.  Wisconsin DPI thanks the Wisconsin Statewide Parent Educator Initiative (WSPEI) for their assistance and co-presentation of this important content.  Video links from the meeting are below and all recorded videos can be accessed on this DPI special education team professional learning events page.

Part 1: Introduction, Family Engagement during COVID-19

Part 2: Additional Services, Extended School Year Considerations and Engaging Families

Resiliency/ Trauma

Access to Internet/Communications

Connect and Share

Connect and Share is an activity where Regional Center staff set up in a local library on a Sturday to offer families a time to drop-in to: 

  • Get to know the services of the Northern Regional Center for Children and Youth with
    Special Health Care Needs
  • Make a Care Binder to organize your child’s medical and school information as a way to help
    track information from multiple specialists and therapies
  • Provide feedback on what trainings the Regional Center should offer locally
  • Help us map out resources in the area
  • Pick up Fact Sheets from Family Voices and booklets on various disabilities
  • Activities available for kids, including making fidgets while parents chat

When #SaferatHome was implemented we setup times for open conversation via Zoom in April to replace these but have discontinued them for right now. Feel free to contact us if you are interested in having a Connect and Share in your community once we are able to travel. 

Family Input needed

Your Input is Valuable- please fill out our survey regarding Family, Youth, and Community Engagement here

Parents Sought for Ongoing Feedback

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through Parent Advisory Councils. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional trainings and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.

We are looking for:

  • Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
  • Live in the 15 counties that are a part of the Northern Regional Center services area. 3 separate Parent Advisory Councils will be set up so that travel will be minimized. These three areas are divided up by color in the map below. 
  • Are willing to provide feedback and suggestions on CYSHCN supports and services

We will hold these meetings twice a year on a weekday evening with a phone/ video conference option as well. Dinner will be provided and parents can receive a gas card for mileage reimbursement if needed.

If you are interested in participating or want more information, contact Allison Lourash at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

 

Circles of Life Conference

Circles of Life 2020 Cancelled.  Circles of Life is Wisconsin’s annual conference for families who have children with disabilities and the providers and other professionals who support them. If you are looking for more information on how to support someone with a disability in Wisconsin, then this is the perfect place to start! The conference will take place in the Spring of 2021 in Stevens Point. Information is at: www.circlesoflifeconference.com/

Using Waiver Funds to Pay for the Conference: Did you know that if your child is on the Children’s Long-term Support (CLTS) Waiver or the Children’s Community Options Program (CCOP) you can use these funds to attend the conference (including registration, hotel and travel)? To learn more, see the helpful step-by-step guide on having waiver funds pay for the conference – How to Have Waiver Funds Pay for Attending a Conference. If you or your child’s service coordinator has questions, contact Kate Johnson, Bureau of Children’s Services at the Department of Health Services at SarahKate2.Johnson@wisconsin.gov or by calling 608.267.4519.

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey- We need your opinion! (This survey is intended for family members of children and youth with disabilities.)
Recent data and stories from families of children with disabilities, like yours, tell us that many who are eligible for long-term supports do not know about these programs and may not be getting what they and their families need.

One solution that disability advocates have proposed is to develop a group of Family Navigators located around the state who would walk alongside families like yours, if you would like, and help you understand what supports are available and how they might help your child. A Family Navigator could help families like yours with understanding and accessing disability-related supports for your son or daughter with disabilities such as health care, community supports, school services, transition services and more.

Wisconsin family advocacy organizations (see list at end of survey) are wondering what you think about having Family Navigators available to all families who want them. Please take just a few minutes to answer the questions in this brief survey.

Your feedback will be compiled with other families and shared with the state officials and legislators. Our goal is to reach 500 families throughout Wisconsin.

This survey will take less than 10 minutes to you to complete. www.surveymonkey.com/r/wisconsinfamilies?fbclid=IwAR2gX6_oOlBITzoK07FNTCxI0nkscouGYC0KqPKC4BXtJH4sKZqtHt5TcWo