Family Support

Below is a list of parent and family support resources that we are aware of for families of children and youth with special health care needs. Children’s Resource Center-North can help you navigate these resources and others by contacting us toll free at 1-866-640-4106 or using the Contact Us form on our website www.crcnorth.org. Our website also has this information, which makes it easy to connect to the websites listed.

Connecting Families– Waisman Center connectingfamilies.waisman.wisc.edu/, working on creating parent support group opportunities for the following populations:

Parent-to-Parent of Wisconsin p2pwi.org/  direct 1:1 parent/caregiver support over the phone. Parents are matched with other parents who have children with the same diagnosis or similar experiences.

Courageous Parent Network- Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

DSAW Down Syndrome Association Wisconsin www.dsaw.org/central-wisconsin www.dsaw.org/supportgroups

Epilepsy Foundation-Wisconsin epilepsywisconsin.org/membership/support-groups/ has virtual and in-person groups in other parts of the state. Parent and Caregiver Connect Group takes place every third Thursday each month at 6:30 over Zoom.  To join, contact Alicia Gajewsky at agajewsky@epilepsywisconsin.org

Autism Society of Greater Wisconsin  autismgreaterwi.org

  • Virtal support group meetings (New to Autism, Dads group, online adult support group) New to Autism Virtual group typically meets the third Monday of the month from 6:30-7:30 PM.
  • Central Chapter offers social activities and special events throughout the year. They can be reached at autismsocietycw@gmail.com.

Other Local Autism Support Groups

Courageous Parent Network- Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

Hand to Hold (NICU Families) handtohold.org/

National Alliance on Mental Illness (NAMI)

  • NAMI Northern Lakes-serves Forest, Oneida, and Vilas counties naminorthernlakes.org/ 715-420-1700
    • Raise Your Voice peer group at Rhinelander HS and LUHS
    • Family Support Group meets at Howard Young in Woodruff on the 1st Tuesday of the month (6:30-8), for individuals 18 and older who have a loved one experiencing mental health issues
  • NAMI Northwoods-serves Marathon, Lincoln, and Langlade www.naminorthwoods.org/
    • Family Support Group meets at Grace United Church of Christ in Wausau on the 4th Monday of the month from 7-8p
    • Peer group for ages 18+ meets 2nd Monday and 4th Wednesday of the month at 5:30p at Grace United Church in Wausau
  • NAMI Portage & Wood www.namiportagewoodcounties.org/

Children’s Wisconsin Family Resource Centers and family programing  childrenswi.org/childrens-and-the-community/families-and-clients/parenting-resources/family-resource-centers

Relatives as Parents Program gwaar.org/grandparents-and-relative-caregivers Grandparents and other relatives who have taken on the role of surrogate parenting due to the absence of the parents can be served through NFCSP if the caregiver is a relative by blood, marriage, or adoption and are at least 55, primary caregiver, lives with the child, and the child is under 19 and/or has a disability

Sibshops Sibling support for children aged 5-12 who have a sibling with special health care needs. These are workshops that are usually offered one Saturday a month. In our region, Sibshops are offered at Marshfield Clinic-Marshfield www.marshfieldchildrens.org/child-life/child-life-services

UW Extension Parenting and Family Relationships parenting.extension.wisc.edu/ Triple P Programs, co-parenting groups

Wisconsin Family Connections Center offers virtual and in-person support for adoptive parents, foster parents, reunified families, kinship care, and adult adoptees

Family Support Summit

Tuesday, April 29, 2025

Lake of the Torches Conference Center

Lac du Flambeau, WI

Image of flyer

Program: We will offer multiple sessions for families and professionals with dinner and a presentation by our keynote speaker, Jules Edwards.  Activities for kids will be available 

Schedule:

  • 3:00-4:00 PM Session for Professionals with Jules Edwards
  • 5:00 PM: Dinner starts, and resources are available
  • 5:15-6:30 PM: Keynote Speaker Jules Edwards during dinner
  • 6:30-7:30 PM: Breakout Sessions
        • Self-Care for All, Sharon Ninedorf, Occupational Therapist
        • Jules Edwards 

 

Keynote Speaker, Jules Edwards: Jules is an Anishinaabe writer, gardener, accountant, and disability justice advocate. She is a neurodivergent parent of neurodivergent children. Experiencing disability through multiple lenses has helped her to help others. She writes as “Autistic, Typing” on her website and social media. Her first book, I Will Die On This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World, was co-written with Meghan Ashburn. Jules’ professional development includes a Leadership Education in Neurodevelopmental Disabilities (LEND) fellowship, Association of University Centers on Disabilities (AUCD) National Training Director Council fellowship, and Wilder Foundation Community Equity Program (CEP) fellowship.

photo of Jules Edwards

You can learn more about Jules from the podcasts below and on her website- autistictyping.com 

59. Culturally Responsive Therapy for Native Autistic Kids with Jules Edwards

 

Autistic Adults and Neurotypical Parents of Autistic Children: The Need to Work Together

 

Family Support Summit

Monday, November 18, 2024

Lake View Conference Center- Wausau (in the Marathon Co/North Central Health Care complex)

1000 Lake View Drive, Wausau, WI 54403

Enter through Door 31 which faces the airport Lake View Conference Center Map

Schedule

3:30- 4:30 PM   Tia Yang Ly will present to professionals on working with Hmong families

5:00 PM: Dinner and resources will be available

5:15-6:30 PM   A panel of providers will answer families’ questions and provide information 

6:30-7:30: 3 breakouts will be available

  • CRC North staff will cover topics around what to do while you are waiting and accessing services through insurance and other programs
  • Tia Yang Ly will present on Autism Awareness in the Hmong Community (for Hmong families and available virtually)
  • Sean Inderbitzen will discuss coregulation; a somatic approach to emotional regulation to children for families

Flyers

Please reach out to us at crcnorth@marathoncounty.gov or 715-261-1906 with any questions. 

Help Families-come work with us

We are hiring for 2 Resource Guides 

Update: the deadline has passed to apply. Stay tuned to meet our new Resource Guides

The Northern Regional Center for Children & Youth with Special Health Care Needs (CYSHCN), within the Marathon County Health Department, has two, part-time opportunities to join our team. Resource Guides help families and stakeholders in a multi-county area to support children with special health care needs/ disabilities access services and supports. Note, these positions do not need to be located within Marathon County.

  • Resource Guides will be located with a community partner and/or their home.
  • Hours will be approximately 15-20 hours per week and will vary based on need, with some set times to participate in community meetings and other times flexible. Evenings and weekends during peak fall and spring times to support trainings and outreach events are needed.
  • Travel will occur throughout the region for community meetings. Some travel outside of the area to state and regional meetings/conferences will occur on occasion.

Fall Events and Updates

Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906 or email specialneedsinfo@co.marathon.wi.us

  • Transition Trainings- we are planning several transition trainings in person in the fall from our partners at the Youth Health Transition Initiative
    • Build Your Bridge: Moving from Child to Adult Health Care: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
    • Bridging the Gap: An overview of youth health transition with information tailored to different, mixed audiences (e.g., parents, teachers, nurses, etc.).
    • Dreaming Differently: To meet the needs of a unique audience, the “Build Your Bridge” curriculum has been adapted for families who are raising children with significant intellectual or developmental disabilities and medical complexity.
  • Trainings with Katie Berg through your local CESA
    • The Supporting Neurodiverse Students (SNS) Professional Learning System provides learning opportunities with a focus on regulation, social communication, flexibility, resilience, sensory processing, and executive functioning. It includes regional training sessions, virtual trainings, and virtual cohorts to support educators and families serving students with disability-related needs in the area of social and emotional learning.  
    • Virtual and In Person opportunities listed here