Family Input needed

Your Input is Valuable- please fill out our survey regarding Family, Youth, and Community Engagement here

Parents Sought for Ongoing Feedback

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through Parent Advisory Councils. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional trainings and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.

We are looking for:

  • Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
  • Live in the 15 counties that are a part of the Northern Regional Center services area. 3 separate Parent Advisory Councils will be set up so that travel will be minimized. These three areas are divided up by color in the map below. 
  • Are willing to provide feedback and suggestions on CYSHCN supports and services

We will hold these meetings twice a year on a weekday evening with a phone/ video conference option as well. Dinner will be provided and parents can receive a gas card for mileage reimbursement if needed.

If you are interested in participating or want more information, contact Allison Lourash at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

 

Circles of Life Conference

Circles of Life 2020 Cancelled.  Circles of Life is Wisconsin’s annual conference for families who have children with disabilities and the providers and other professionals who support them. If you are looking for more information on how to support someone with a disability in Wisconsin, then this is the perfect place to start! The conference will take place in the Spring of 2021 in Stevens Point. Information is at: www.circlesoflifeconference.com/

Using Waiver Funds to Pay for the Conference: Did you know that if your child is on the Children’s Long-term Support (CLTS) Waiver or the Children’s Community Options Program (CCOP) you can use these funds to attend the conference (including registration, hotel and travel)? To learn more, see the helpful step-by-step guide on having waiver funds pay for the conference – How to Have Waiver Funds Pay for Attending a Conference. If you or your child’s service coordinator has questions, contact Kate Johnson, Bureau of Children’s Services at the Department of Health Services at SarahKate2.Johnson@wisconsin.gov or by calling 608.267.4519.

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey- We need your opinion! (This survey is intended for family members of children and youth with disabilities.)
Recent data and stories from families of children with disabilities, like yours, tell us that many who are eligible for long-term supports do not know about these programs and may not be getting what they and their families need.

One solution that disability advocates have proposed is to develop a group of Family Navigators located around the state who would walk alongside families like yours, if you would like, and help you understand what supports are available and how they might help your child. A Family Navigator could help families like yours with understanding and accessing disability-related supports for your son or daughter with disabilities such as health care, community supports, school services, transition services and more.

Wisconsin family advocacy organizations (see list at end of survey) are wondering what you think about having Family Navigators available to all families who want them. Please take just a few minutes to answer the questions in this brief survey.

Your feedback will be compiled with other families and shared with the state officials and legislators. Our goal is to reach 500 families throughout Wisconsin.

This survey will take less than 10 minutes to you to complete. www.surveymonkey.com/r/wisconsinfamilies?fbclid=IwAR2gX6_oOlBITzoK07FNTCxI0nkscouGYC0KqPKC4BXtJH4sKZqtHt5TcWo