Join our Parent Network

Tuesday, Nov 30, 2021, at 6 PM

Join Zoom Meeting:

us02web.zoom.us/j/83650546202?pwd=a2hHZHJBb2pUNDQ4NDc3cVJ6bGVRQT09

Phone: +1 312 626 6799 US (Chicago)

Meeting ID: 836 5054 6202

Passcode: 677043

One tap mobile: +13126266799,,83650546202#

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through a Parent Network. We have many great parent leaders in our area who have valuable information. This will also be an opportunity to network with each other. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional training and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.

We are looking for:

  • Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
  • Live in the 15 counties that are a part of the Northern Regional Center services area (map below). 
  • Are willing to provide feedback and suggestions on CYSHCN supports and services

If you are interested in participating fill out the form below or if you want more information, contact Allison Lourash for the Zoom link at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

Image of 15 counties with those in the Northwest in green, Northern in blue, and central in Yellow

Fall Trainings

Bridging the Gap focused on Mental Health: An overview of youth health transition with information tailored to mixed audiences (e.g., parents, teachers, nurses, etc.) with focus on mental health concerns. Co-presented with the Western Regional Center. A 20-minute video to watch before the training is here. Flyer

  • Thursday, October 28, 6-7 PM

What’s After High School?-from Family Voices of Wisconsin: A broad overview of the transition to adult life for youth with disabilities and special health care needs. Includes: envisioning a youth’s future; post-secondary concerns; long-term supports; transitioning to adult health care; legal considerations; and supported decision making. This is an abbreviated online version of the training for families to get their questions answered. Flyer

  • Tuesday, November 2, 5- 6 PM. This will be an overview of the full in-person training which can also be viewed online here.

Registration for the trainings above is here.  You will be sent the Zoom link after you register and a reminder closer to the training date. You can register up until the time of the training. Contact us if you have any other questions. 715-261-1906 or specialneedsinfo@co.marathon.wi.us


Did You Know? Now You Know! explains resources and services for children with disabilities and special health care needs from birth through young adulthood. Learn about programs and services available, health insurance options, parent supports, and other long-term supports for your child and family. Topics include: Medicaid, Children’s Long-Term Support programs, resources, respite, partnering with your doctor and more.

 

Upcoming Trainings and Conferences

Here is a list of upcoming conferences and training. If a child receives CLTS, parents may utilize funds for training from the Children’s Long Term Support waiver by contacting their county Support and Service Coordinator. Many conferences also offer parent scholarships and we can also assist you in getting to these important events through scholarships for hotel and mileage. Give us a call at 715-261-1906. 

2021

2022

 

Upcoming events in Oneida County

Connect with other families, gather resources, and learn from our trainings. Don’t have time to attend one of the trainings? Drop in and grab some resources. Contact our office ahead of time if you need specific resources and we will make you a packet. Flyer here


Tuesday, August 10, 2021: come when you can or stay for “Did You Know? Now You Know!” – explains resources and services for children with disabilities and special health care needs from birth through young adulthood. Learn about health insurance and how to best use your benefits, Medicaid, and long-term supports. Topics include Medicaid, Children’s Long-Term Supports, prior authorizations and appealing a Medicaid denial, respite, partnering with your doctor, and more.  A recording of the full training is also on the Family Voices of Wisconsin website here

11 AM- 1 PM Minocqua Park

11:30 AM – 12:30 PM Did You Know? Now You Know!

10295 WI-70, Minocqua, WI 54548 

Map: goo.gl/maps/WC3XFXqXMBsktF4t7

 

4:30-7 PM Rhinelander Pioneer Park

5:30-6:30 PM Did You Know? Now You Know!

Pavillion #2 (near the playground)

goo.gl/maps/TrYUqDWwvxWTEgy57


Thursday, August 19, 2021: come when you can or attend the C.A.R.E. Series workshops– Assembling a Care Notebook and Exploring Care Mapping. Assembling a Care Notebook is a short session on how to create a ready resource that contains pertinent information for your child and their caretakers. Exploring Care Mapping lets you design a care map for your family which will serve to show others at a glance all of the people and resources supporting your child’s development.

11 AM- 1 PM Rhinelander Pioneer Park

11:30 AM- 12:30 PM C.A.R.E. Series workshops

Pavillion #2 (near the playground)

goo.gl/maps/TrYUqDWwvxWTEgy57

 

4:30-7 PM Minocqua Park

5:30-6:30 PM C.A.R.E. Series workshops

10295 WI-70

Minocqua, WI 54548 

Map: goo.gl/maps/WC3XFXqXMBsktF4t7


We will have all these events in open-air pavilions with plenty of space to social distance and COVID-19 precautions appreciated. Everyone is welcome but registration for training is appreciated. Gas cards are available for mileage reimbursement if you pre-register. We will need insurance information and you will need to fill out a very brief scholarship form. You can register here. 

Contact us at 715-261-1906 or via email at specialneedsinfo@co.marathon.wi.us to register or questions.

Summer Camps Update 2021

We wanted to provide some updates on summer camps for 2021 as families start planning. The Northern Regional Center does not endorse any of these camps and this information is provided only as a resource. When considering camps there can be many options depending on your child’s needs and interests. You can talk to camps to see if they can accommodate your child or other parents who may have already had their children participate. 

  • 4-H Camp Susan, near Deerbrook, in the rural Northwoods is open this summer: www.facebook.com/Langlade-Co-4-H-Camp-Susan-112777002120522/
    • You can hear more about how Camp Susan has accommodated campers in the past with this video: youtu.be/IK4PcchE2es
  • Fort Wilderness camp near Rhinelander is another camp that parents have said their children with disabilities/ special health care needs have enjoyed: www.fortwilderness.com/camp
  • YMCA Camp Sturtevant in Wausau offers day camps for the entire summer as well as other opportunities. They do accept the child care subsidy and have camper scholarships. Kids are outside all day enjoying camp and the activities that come with it. There is an indoor building for activities for rainy weather.  www.woodsonymca.com/summer-camp
  • Also in the Wausau area, Rainbow’s End Day Camp for children 5-21 is typically held in July but is canceled this year. www.aspirus.org/rainbowsend-day-camp
  • Camp Awesum fills up very quickly each year and they are only holding their Family Camp this year. Registration for Youth Camp for 2022 opens on 1/2/22.  
    • Learn more about Camp Awesum from this presentation they did for us along with their partners at Scholl Community Impact Group: youtu.be/XLoEUTI2Mx0
  • Wisconsin Lions Camp is running this year with less campers due to Covid-19. Each week they have a cap of 100 campers. The link below is updated weekly to show how many openings are still available for each week. www.wisconsinlionscamp.com/summer-camp/
  • WisconSibs is offering sibling camps this summer in Door County- wisconsibs.org/whats_happening/eventscalendar/
  • Wisconsin Youth Leadership Forum– occurs yearly in the summer. Become a part of the youth that lead us! This week-long forum is for high school students with disabilities who want to learn more about leadership, self-advocacy skills, and career awareness.
  • Camp LuWiSoMo Joyful Hearts ministry is designed for individuals with developmental disabilities, providing a quality camping experience in a safe, Christian environment. All campers take part in the usual camp activities, but each activity is modified based on the needs of the camper. Located in Wild Rose, WI (south of Stevens Point)
  • Camp Daniel is an organization dedicated to providing people with disabilities opportunities for personal, social, and spiritual growth. Camp Daniel is rooted in its summer camping program that offers people with disabilities access to safe and fun Northwoods camping experiences, where the physical, social, and spiritual needs, that each person’s disability requires, are lovingly met. In Marinette County. 
  • Easter Seals Camp Wawbeek in Wisconsin Dells. COVID-19 updates.

Our partners at Family Voices of Wisconsin created this list of camps across the state a few years ago if you are looking outside the area: familyvoiceswi.org/resource-library/1304/.

Cost of camps: Camps are funded in a variety of ways and the costs can vary greatly. For example, Wisconsin Lions Camp is $25 to attend, but when the camper gets to camp they are able to use those funds at the camp store. Child care subsidies or a sliding fee scale may assist with camp. Some camps have scholarships available or you may be able to utilize CLTS funds for camp as respite. Give us a call if you need help navigating this or want more information.