From Family Voices- “Riding the Waves of COVID-19: An Information Series for Families of Children and Youth with Special Health Care Needs or Disabilities”

Flyer is attached here and copied below. 

“Riding the Waves of COVID-19: An Information Series for Families of Children and Youth with Special Health Care Needs or Disabilities”
Flyer information copied below:

Do you have COVID confusion?
Are you wondering how to keep your child and family healthy as our world reopens?
If so, please join us for:
“Riding the Waves of COVID-19: An Information Series for Families of Children and Youth with Special Health Care Needs or Disabilities”

This brief webinar series will be held:
Tuesday, May 26 12:30 – 12:45 pm
Part I: Dr. Vivek Balasubramaniam, “A look back and where we are now”

Wednesday, May 27 12:30 – 12:45 pm
Part 2: Dr. Mary Ehlenbach, “A look forward and how to emerge from staying home”

Thursday, May 28 12:30 – 12:45 pm
Part 3: Stephanie Farrell, PhD, “Strategies and tools for maintaining and boosting resiliency”
To connect, go to: uwmadison.webex.com/uwmadison/j.php… Password: Families (32645437)

This series will be archived after June 1 on the Family Voices of Wisconsin website: familyvoiceswi.org/news

 

Education Resources during COVID-19

Educational Resources on being out of school

  • Early Childhood Development: This guide pulls together information on COVID-19, what it means for child development, and easy-to-share resources that can help parents and caregivers, as well as child care providers, pediatricians, and others who work with families.
  • A list of daily tasks that are important learning opportunities is here
  • Supporting Your Child in Virtual Formats– a two page guide from the Florida Inclusion Network. Also in Espanol 
  • Scholastic Books is offering free lesson plans by grade level online.
  • List of free education resources/software available at this time: www.amazingeducationalresources.com/
  • Working and Learning from Home from the American Academy of Pediatricians
  • Illinois State Board of Education’s put together a lengthy document with remote learning recommendations here. The most widely discussed piece is this graphic on time spent during the day-

Special Education

Parenting Support and Resources during COVID19

Updates and information on reopenings

Resource specific to parents of children with Special Health Care Needs/ Disabilities 

Resiliency/ Trauma

Fun Stuff for both Kids and Parents

Basic Needs during COVID19

Here are some resources and updates regarding some program changes during COVID19. Be sure to check out our CYSHCN Network Partners

Education Access

Economic and Food Assistance: 

  • Economic Impact Payments are coming to most Americans through the IRS. If you have questions you can go to this site: www.irs.gov/coronavirus/economic-impact-payments. Questions regarding payments for SSI/SSDI recipients is available from the Social Security Administration here. Other questions like whether these payments impact programs like SSI/SSDI is available from the Social Security Administration here.
  • Additional Food Share Benefits information is available from DHS here
  • Financial resources from UW Extension are here, including how to connect with a financial educator
  • WIC has expanded the list of available products that can be purchased. Use the WIC app to learn more. 
  • Your local 211 is a great resource regarding basic needs.  The statewide site has a searchable database here

Badgercare/Medicaid and other State Programs:

Connect and Share

Connect and Share is an activity where Regional Center staff set up in a local library on a Sturday to offer families a time to drop-in to: 

  • Get to know the services of the Northern Regional Center for Children and Youth with
    Special Health Care Needs
  • Make a Care Binder to organize your child’s medical and school information as a way to help
    track information from multiple specialists and therapies
  • Provide feedback on what trainings the Regional Center should offer locally
  • Help us map out resources in the area
  • Pick up Fact Sheets from Family Voices and booklets on various disabilities
  • Activities available for kids, including making fidgets while parents chat

When #SaferatHome was implemented we setup times for open conversation via Zoom in April to replace these but have discontinued them for right now. Feel free to contact us if you are interested in having a Connect and Share in your community once we are able to travel. 

Family Input needed

Your Input is Valuable- please fill out our survey regarding Family, Youth, and Community Engagement here

Parents Sought for Ongoing Feedback

The Northern Regional Children and Youth with Special Health Care Needs (CYSHCN) Center is looking for feedback from families through Parent Advisory Councils. We want parents to let us know what is working and what is not. We also would appreciate suggestions on additional trainings and programs. Additionally, these meetings will be an avenue for staff to provide updates on projects that we are developing.

We are looking for:

  • Parents/ primary caregivers of children with special health care needs and/or disabilities under age 22
  • Live in the 15 counties that are a part of the Northern Regional Center services area. 3 separate Parent Advisory Councils will be set up so that travel will be minimized. These three areas are divided up by color in the map below. 
  • Are willing to provide feedback and suggestions on CYSHCN supports and services

We will hold these meetings twice a year on a weekday evening with a phone/ video conference option as well. Dinner will be provided and parents can receive a gas card for mileage reimbursement if needed.

If you are interested in participating or want more information, contact Allison Lourash at 715-261-1906 or via email at Allison.lourash@co.marathon.wi.us.

 

Community of Practice on Autism Video Conference- March 10

Community of Practice on Autism Spectrum Disorder and Other Developmental Disabilities (CoP ASD/DD)

This year’s topic: Anxiety & ASD/DD: What we know and what we can do about it

Presentation topics include general information on anxiety and ASD/DD, anxiety in schools, suicide and a personal story.

Tuesday, March 10, 2020

8:30am-12:30 PM, Registration opens at 8:15 AM

There is no charge for this event.

Register at go.wisc.edu/copmarch2020. You will choose your site when you register. CEU’s are being offered by the University of Wisconsin Superior Center for Continuing Education at cvent.me/9a3vAk. There is a fee associated with CEUs and they are only available for people who attend and sign-in at a host site.

Updated information will be posted on connections.waisman.wisc.edu/future-meeting/.

We will be hosting in Wausau but you can join in multiple sites across the state including Rhinelander, Park Falls, Ashland, Stevens Point

Circles of Life Conference

Circles of Life 2020 Cancelled.  Circles of Life is Wisconsin’s annual conference for families who have children with disabilities and the providers and other professionals who support them. If you are looking for more information on how to support someone with a disability in Wisconsin, then this is the perfect place to start! The conference will take place in the Spring of 2021 in Stevens Point. Information is at: www.circlesoflifeconference.com/

Using Waiver Funds to Pay for the Conference: Did you know that if your child is on the Children’s Long-term Support (CLTS) Waiver or the Children’s Community Options Program (CCOP) you can use these funds to attend the conference (including registration, hotel and travel)? To learn more, see the helpful step-by-step guide on having waiver funds pay for the conference – How to Have Waiver Funds Pay for Attending a Conference. If you or your child’s service coordinator has questions, contact Kate Johnson, Bureau of Children’s Services at the Department of Health Services at SarahKate2.Johnson@wisconsin.gov or by calling 608.267.4519.

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey

Wisconsin Family and Caregiver Support Alliance Underserved Families Survey- We need your opinion! (This survey is intended for family members of children and youth with disabilities.)
Recent data and stories from families of children with disabilities, like yours, tell us that many who are eligible for long-term supports do not know about these programs and may not be getting what they and their families need.

One solution that disability advocates have proposed is to develop a group of Family Navigators located around the state who would walk alongside families like yours, if you would like, and help you understand what supports are available and how they might help your child. A Family Navigator could help families like yours with understanding and accessing disability-related supports for your son or daughter with disabilities such as health care, community supports, school services, transition services and more.

Wisconsin family advocacy organizations (see list at end of survey) are wondering what you think about having Family Navigators available to all families who want them. Please take just a few minutes to answer the questions in this brief survey.

Your feedback will be compiled with other families and shared with the state officials and legislators. Our goal is to reach 500 families throughout Wisconsin.

This survey will take less than 10 minutes to you to complete. www.surveymonkey.com/r/wisconsinfamilies?fbclid=IwAR2gX6_oOlBITzoK07FNTCxI0nkscouGYC0KqPKC4BXtJH4sKZqtHt5TcWo